A Note to Jenny McCarthy


A Note to Jenny McCarthy.

Jenny McCarthy: Autism Moms “Fall in the the victim role…and they are loving it”


Jenny McCarthy: Autism Moms “Fall in the the victim role…and they are loving it”.

 

A response to Jenny McCarthy’s claim that mom’s who aren’t “Warriors” are “Victim’s” attacking any mom who parents a child with autism is pointless and harmful. Maybe your income level does not allow you to be a “Warrior” or maybe you simply can not reconcile spending thousands of dollars on treatments that may or may not work. I am not bashing anyone for their choice on how best to help their child.
Does anyone know if her child has autism? I know a lot of mom’s believe recovery is possible. I am not so sure. My son started with what are state calls Early On for early intervention. We do not have an ABA program near me. At 3.5 he entered an ESCE program completely non-verbal. We did not receive an offical diagnosis until age 6. By that time he had been verbal for two years. Speech therapy helped him immensely. The school added in Occupational Therapy in 2009. He has SPD as well. The OT helped deal with his SPD. In 2010 when we received his official dx we took him to private OT. We also started him on A GFCF diet. He is now 8 and is going into Gen ed 2nd grade. He still receives speech, OT, and resource room. He is verbal but has difficulties communicating sometimes. A lot of the issues he had like super huge meltdowns, behavior issues in a public setting, etc. Have been greatly reduced with therapy. If you had met him at 3 and then saw him now at 8 you would never believe he’s the same kid. He has made HUGE progress and still he is in no way recovered by any means. Nor do I believe that if Jenny McCarthy’s son really ever had autism that he is recovered. She still refers to her child as having autism. If her child had recovered why would she do that? Autism is a brain based difference and I don’t believe any amount of treatment has the ability to change your brain’s functioning completely. And I most definitely am no victim. Just my children’s mom.

Jenny McCarthy: Autism Moms “Fall in the the victim role…and they are loving it”


Jenny McCarthy: Autism Moms “Fall in the the victim role…and they are loving it”.

Back to School: What is your child eating for lunch?

Nighttime Terror


My son is a Nighttime Terror. Last night while my daughter was asleep my son was in the hallway screaming and yelling that he did not want to go to bed. Since school let out on June 14 he has been pushing my buttons and making nighttime very unpleasant.

Last night he woke up his his sister who could not get back to sleep. Until 2 am. Well after Adrian fell asleep. If the kids are not asleep I do not sleep. There are too many things to worry about already. I don’t need to be worried about what they’ll do if I’m asleep while their awake. This causes everyone to sleep in. No matter how late I set my alarm for I never seem to get up when it goes off. If I do I seem to drift off again. I am always awake before the kids though who would sleep till noon if I let them.

This also causes some tension between my husband and I who works third shift and likes to go to sleep at between 8 and 9 am. If I am asleep at 8 or till 9 because I was up till 2 or 3 am it interferes with his sleep. My husband gets pretty grouchy when he does not get enough sleep and let’s just say he’s pretty grouchy lately.

Adrian affects every person in our household whether it’s Jade being woke up, me being kept up, or my husband being sleep deprived.

The more I read about other mothers story’s I find that sleep at night is a big problem! I have thought about putting Adrian on Melatonin, but he is already on Keppra, Valium, Metadate cd, Prevacid, and Zyrtec. Those are enough drugs for anyone child. Besides I think his nighttime terror issue has more to do with the schedule change than anything else.

He has had difficulties with sleep since he was a baby though. Any change or mood swing would send him into insomnia. The longest episode was Six months when he was two. I spent those nights much as I do now. Reading books, watching cartoons and rocking while singing. Eventually he would grow tired and fall asleep usually on his floor.

Lately I have spent my night and early morning watching WALL-E. I don’t mind that my son watches the same movie over and over again or that he hears the opening song and starts singing ” and we won’t come home until we’ve kissed a girl.” Then he exclaims that he’s kissed a girl before. His sister Jade. He then laughs.

This it what makes all the craziness worth it. That laughter is like gold. He does not laugh often so when he does I treasure it. We don’t hear I love you’s or answers to questions or a lot of eye contact but when those moments happen they make everything we go

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